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Terms of reference

  • To advise Ministers in the UK on the potential ethical and legal implications of human genetic knowledge and its applications for health, economic and social well-being, including:
    -
    the need to fill any knowledge gaps;
    - the development of national policies;
    - the requirement for legislative action.
  • To encourage and promote public awareness and understanding of human genetic knowledge and its applications.
  • To work in partnership and exchange information with other relevant organisations in the pursuit of the above.
  • To consider specific issues related to human genetics and related technologies as requested by Ministers.
  • To work in accordance with best practice for public bodies with regard to openness, transparency, accessibility and timeliness.

In considering national issues, HGC will adopt a UK perspective which will include taking account of legal and other differences between England, Scotland, Wales and Northern Ireland, and of the status of devolved and non-devolved matters.