Other documents
Latest publications
Letter from Professor Jonathan Montgomery to Dr Mark Bale (DH)
Regarding Whole Genome Sequencing - date 2 July 2010
Letter from Professor Jonathan Montgomery to UKBA
Regarding the Human Provenance Pilot Project - date 2 July 2010
Letter from Douglas Martin (UKBA)
Regarding the Human Provenance Pilot Project - date 19 March 2010
Minutes of meeting between HGC and the UK Border Agency
Regarding the UKBA's Human Provenance Pilot Project
Presentation by Dr. Jane Kaye
Whole Genomes and Data Sharing
Presentation by Dr. Hilary Burton
Personal Genetic Profiling
Presentation by Dr. Helen Firth
Personal Genetic Profiling: the next 10 years - Clinical applications
Presentation by Dr. Matt Hurles
Personal Genetic Profiling
Presentation by Simon Burall
'Developing and Embedding Public Engagement into Corporate Strategy'
Presentation by Dr Jackie Leach Scully
The value of public engagement for the public(s)
Presentation by Dr Gill Haddow
'Reflections on the public consultation/engagement of Generation Scotland: The Scottish Family Health Study'
Report - how student's responses will feed into HGC work
Genetic testing and young people workshop
Student voting results
Genetic testing and young people workshop
Letter to Will O'Reilly in the UK Border Agency
Request for further information by the HGC on the Human Provenance Pilot Project - 19 February 2010
Letter to Will O'Reilly in the UK Border Agency
Request for information by the HGC on the Human Provenance Pilot Project - 1 February 2010.
HGC09 P18 PGD survey - Annex D regional PGD policies
PGD survey regional PGD policies.
HGC09 P18 PGD survey - Annex C responses from providers
PGD survey responses from providers.
HGC09 P18 PGD survey - Annex B responses from PCTs
PGD survey - responses from PCTs.
HGC09 P18 PGD survey - Annex A Survey letter
Survey sent to PCTs and PGD providers
Paper by Catherine Casserley 'The legal framework'.
Paper by Catherine Casserley 'Discrimination and genetic pre-disposition - the legal framework' at joint HGC/AHRC seminar 'Understanding Genetic Discrimination'.
Presentation by Professor Brigitte Nerlich 'Genetic discrimination: A view from linguistics'.
Presentation by Professor Brigitte Nerlich 'Genetic discrimination: A view from linguistics' at joint HGC/AHRC seminar 'Understanding Genetic Discrimination'.
Presentation by Professor Paul Miller 'Are my genes making me redundant?'
Presentation by Professor Paul Miller 'Are my genes making me redundant? Understanding genetics and discrimination - a perspective from the United States' at joint HGC/AHRC seminar 'Understanding Genetic Discrimination'.
Presentation by Catherine Casserley 'The legal framework'.
Presentation by Catherine Casserley 'Discrimination and genetic pre-disposition - the legal framework' at joint HGC/AHRC seminar 'Understanding Genetic Discrimination'
Presentation by Dr Staffan Mueller-Wille 'Genetic Discrimination: Lessons from History'
Presentation by Dr Staffan Mueller-Wille 'Genetic Discrimination: Lessons from the History of Genetics and Eugenics' at joint HGC/AHRC seminar 'Understanding Genetic Discrimination'.
Presentation by Professor John Dupre 'What is genetic discrimination?'.
Presentation by Professor John Dupre 'What is genetic discrimination?' at HGC/AHRC seminar 'Understanding Genetic Discrimination'.
Letter to the Public Health Minister regarding future HGC business.
Letter from the HGC Chair to Gillian Merron MP, Minister of State for Public Health regarding future HGC business.
Letter to the Public Health Minister on future arrangements for genetics and insurance.
Letter to the Public Health Minister on future arrangements for the Genetics and Insurance Committee.
Joint HGC/AHRC seminar: Understanding Genetic Discrimination
Seminar programme
Genomic Medicine - HGC's advice
HGC letter to Department of Health regarding the House of Lords Science 7 Technology Committee's Genomic Medicine Report
HGC survey of PGD funding
HGC is conducting a survey of the state of funding for PGD across the UK.
Letter to Directorate Generale for Enterprise at the European Commission
The HGC reiterates recommendations about genetic tests covered by the IVDD Directive
Letter to the Information Commissioner regarding Genetic Testing in Employment
From HGC Chair to Richard Thomas dated 3 April 2009
Letter on a European action in the field of rare diseases
Letter from HGC Chair to UK MEPs of 21 April 2009
Register of HGC Members' Interest
Register of Members' Interest
Profiling over the counter genetic tests report by Dr Frances Flinter
Report detailing the work of the HGC on genetic tests sold direct to the public submitted to Nordics Committee on Bioethics
Systems biology: social and ethical considerations
Presentation on social and ethical considerations of systems biology by Dr Jane Calvert
Systems Biology: its origins and implications
Presentation on systems biology by Professor Ian Booth
Direct genetic testing seminar - report
Read the report summarising the key topics of discussion during the direct genetic testing seminar on the 30 June 2008
HGC writes to the Department of Health about HGC survey on funding of NHS genetic services.
HGC reports in outline its findings of a survey of NHS genetic services to the Department of Health.
Citizens' Inquiry - Evaluation Report
A report by the independent evaluator of the Citizens' Inquiry into the forensic use of DNA and the National DNA Database
Citizens' Inquiry - Contractor's Report
A report on the Citizens' Inquiry into the forensic use of DNA and the National DNA Database
Citizens' Inquiry - Introduction by the HGC Working Group
Introduction to the Citizens' Inquiry into the forensic use of DNA and the National DNA Database
Citizens' Inquiry - Summary of conclusions
Summary of the conclusions of the Citizens' Inquiry into the forensic use of genetic information and the National DNA Database
Citizens' Inquiry - Citizens' Report
Citizens' report from the Citizens' Inquiry into the forensic use of genetic information
Government response to the HGC Review
Government response to the Light touch Review of the HGC - May 2008
HGC letter to DH Director General of R&D
Letter to DH Director General of R&D regarding cell-free fetal nucleic acid testing
HGC advice on cell-free fetal nucleic acid testing
HGC letter to the Department of Health, February 2008
Minute of HGC meeting with Government Equalities Office
Minute of HGC meeting with Government Equalities Office
SPECIFICATION FOR THE HGC CITIZENS' INQUIRY
The Human Genetics Commission intends to collaborate on a citizens' inquiry beginning in November 2007. This specification outlines the objectives of the work.
Minute of the Genes Direct follow up meeting
Minute of the Genes Direct follow up meeting
Presentation by Professor Mark Walport
Presentation given by Professor Mark Walport at the February 2007 information gathering session
Presentation by Dr Celia Caulcott
Presentation given by Dr Celia Caulcott at the February 2007 information gathering session
Presentation by Professor Hugh Watkins
Presentation given by Professor Hugh Watkins at the February 2007 information gathering session
Presentation by Dr Sarah Wordsworth
Presentation given by Dr Sarah Wordsworth at the February 2007 information gathering session
Information Sheet on Genetics and Employment
Information Sheet on Genetics and Employment
HGAC Website content
This winzip file contains the content from the old HGAC website
Ageing research or understanding age related disease
A presentation by Professor Doug Turnbull. Department of Neurology, Mitochondia Research Group, University of Newcastle upon Tyne.
'Mechanisms for extending lifespan (SENS) genetic aspects
A presentation by Aubrey de Grey, 'Mechanisms for extending lifespan (SENS) genetic aspects
'The role of genes and genetics in cognitive aging.
A presentation by Professor Ian Deary, University of Edinburgh.
Children, Parents and Genetics: entangled interests
Presentation by Professor Jonathan Montgomery