Human Genetics Commission

Other news

• Joint HGC/AHRC seminar 'Understanding Genetic Discrimination'
  The Human Genetics Commission and the Arts and Humanities Research Council joint seminar on 'Understanding Genetic Discrimination' held in London on 28 January 2010.
• It's time to put the police DNA Database on a proper statutory footing
  HGC Report published
• Government announces revised proposals for 'genetic probation'
  Home Office proposals for the National DNA Database published
• HGC publishes consultation on direct-to-consumer genetic testing
  The HGC is consulting on a Common Framework of Principles for direct-to-consumer genetic testing services developed by an HGC-led international expert group
• The HGC is coming to Liverpool
  Join the audience for the HGC meeting in Liverpool on 23 September
• HGC responds to consultation on Medical Profiling and Online Medicine
  Read the HGC response to the Nuffield Council on Bioethics consultation
• HGC responds to new proposals for the National DNA Database
  Read the HGC's response to the Home Office's recent consultation
• HGC survey of Preimplantation Genetic Diagnosis (PGD) funding
  HGC is conducting a survey on the funding of PGD. The closing date for responses is 14 August 2009.
• HGC Secretariat report Autumn 2009
  The September 2009 HGC plenary Secretariat report contains reports on developments on UK health and science policy related issues and on international developments compiled by the Foreign and Commonwealth Office Science and Innovation network.
• Seventh HGC Annual Report
  The seventh HGC Annual Report has been published. The report details the Commission's work from April 2007 to March 2008.
• HGC writes to the European Commission
  The HGC reiterates recommendations about genetic tests covered by the IVDD Directive
• HGC welcomes House of Lords Science and Technology Committee report on Genomic Medicine
  Professor Jonathan Montgomery, Chair of HGC, welcomes Genomic Medicine report.
• New Government proposals for the National DNA Database
  The DNA records of innocent people are to be kept on the National DNA Database, but only for a limited time
• European action in the field of rare diseases
  Letter from the HGC Chair to UK MEPs ahead of debate on rare diseases
• HGC statement on genetic testing and personalised nutrition
  The HGC welcomes the statement issued by the Scientific Advisory Committee on Nutrition and has produced a statement in response
• HGC responds to Department of Health consultation on HFE Regulations
  The HGC has submitted a response to the Department of Health consultation on The Human Fertilisation and Embryology (Disclosure of Information for Research Purposes) Regulations 2009.
• Proposals on the forensic use of DNA in Scotland published
  The Scottish Government has published a report on its 2008 consultation on the acquisition and retention of DNA and fingerprint data
• HGC wins award for public dialogue
  HGC voted 'most engaged policy maker'
• New Chair and Members of the Human Genetics Commission
  Health and Science Ministers have announced the appointment of a new Chair and five new members to the HGC
• Watch 'the National DNA Database on Trial'
  Video footage of the mock 'trial' held in Cardiff in December 2008
• HGC responds to NHS Connecting for Health consultation on additional uses of patient data
  The HGC submits response to the NHS Connecting for Health consultation on additional uses of patient data.
• HGC Commissioner presents at the Nordic Committee on Bioethics conference
  Dr Frances Flinter will discuss the work of the HGC on direct genetic tests
• HGC advises that more information should be provided to the public about PGD services
  The call came as part of the HGC's response to the Human Fertilisation & Embryology Authority's recent consultation on the presentation of clinic data
• BBC programme shines spotlight on direct genetic testing
  BBC Radio 4's Analysis programme investigates direct-to-consumer DNA testing
• Podcasts of HGC's Plenary Meetings
  You can listen to Podcast recordings of the HGC's Plenary Meetings
• European Court of Human Rights judgement in S and Marper v United Kingdom
  The European Court of Human Rights has handed down its judgement in the case of two people whose DNA was kept despite them not being convicted of an offence
• Genetic Ancestry Testing
  Read HGC's information on genetic ancestry testing
• HGC responds to Scottish forensic DNA consultation
  HGC's response to proposals following the Fraser report on retention of DNA and fingerprint data in Scotland.
• Non-invasive prenatal testing
  Read the HGC's conclusions about the new technique of free fetal DNA testing
• "I worry about the chance of genetic discrimination in the future. It needs tight controls"
  Read more comments from the public on three topical issues surrounding DNA testing
• Direct genetic testing in the news
  'Rival genetic tests leave buyers confused' - Sunday Times article
• HGC seeks new Chair and 8 Commissioners
  The HGC is seeking to appoint a new Chair and eight Commissioners to replace those who retire from the Commission at the end of 2008
• HGC statement on Government response to Single Equality Bill
  The HGC has published a statement on the Government's response to the Single Equality Bill.
• Live HGC Consultation
  Forensic DNA Databases (closes 7 November)
• Citizens' Inquiry calls for more public information and more oversight of National DNA Database
  The release of the Citizens' Inquiry conclusions marks the start of a wider consultation for the HGC
• The 6th HGC Annual Report
  Download your copy!
• HGC gives oral evidence to House of Lords Genomic Medicine Inquiry
  John Sulston, Christine Patch and Frances Flinter gave evidence on behalf of the HGC to the House of Lords Science and Technology Sub-committee inquiry on Genomic Medicine
• HGC seminar on genetic tests sold directly to the public a success
  A seminar involving commercial genetic test providers concludes with support for industry guidelines for genetic tests sold directly to the public
• HGC welcomes announcement of extension to insurance moratorium but further protections needed
  The HGC today welcomed the ABI's announcement of an extension to the moratorium on the use of predictive genetic test results in insurance but called for further protections
• HGC submission to OECD on Biobanks
  HGC response to the OECD consultation on guidelines for Human Biobanks and Genetic Research Databases
• HGC quoted in Lancet article
  The HGC's concerns regarding private genetic tests are highlighted in an article in the Lancet.
• HGC 'exceptional value for money'
  The HGC has received a ringing endorsement from Ministers following an independent review
• HGC submits evidence to House of Lords Genomic Medicine Inquiry
  HGC has produced a written submission to the House of Lords Science & Technology Committee's Genomic Medicine Inquiry
• Exhibition visitors inform HGC discussions
  The views of visitors to a new touring exhibition will contribute to the HGC's discussions on a variety of issues
• Embryo research and the HFE Bill
  Read the HGC's statement on the creation of human-animal 'admixed' embryos for research
• HGC responds to Ministry of Justice consultation
  HGC responds to Ministry of Justice consultation on the use and sharing of personal information
• HGC Citizens' Inquiry into forensic use of DNA gets underway
  HGC announces the appointment of Blackburn based Vis-a-Vis RC Ltd to facilitate the Inquiry, which will involve up to two hundred people at group sessions in Birmingham and Glasgow
• HGC calls for regulation of direct-to-public tests
  Britain could be on the verge of an explosion of genetic tests sold directly to the public. Yet there are virtually no independent checks on the tests before they are put on sale, says the HGC in its new report, More Genes Direct.
• HGC statement on private genetic tests
  The HGC has responded to concerns raised about private genetic testing services promoted in the media
• HGC responds to the MHRA consultation
  HGC responds to the Medicines and Healthcare Products Regulatory Agency's Consultation on the Challenges and Priorities for the next five years
• Consultative Panel
  The HGC is looking for people to join its consultative panel to help inform its advice to government on genetics issues.
• HGC welcomes Report on forensic use of DNA
  HGC welcomes Nuffield Report on the forensic use of bioinformation
• HGC responds to the Discrimination Law Review
  The HGC has called on the Government to consider legislating now to prohibit unfair genetic discrimination.
• Helena Kennedy steps down as HGC Chair
  Helena Kennedy has announced that she is to step down as chair of the HGC. Sir John Sulston has taken her place as acting chair.
• Meeting between HGC and the Equalities Office
  HGC Commissioners met with officials from the Government Equalities Office to discuss the consultation on the Single Equality Bill. The HGC response to the consultation will be discussed at the September Plenary in Durham.
• HGC leaflets available
  The HGC has produced an informative leaflet which explains the role and function of the Commission
• HGC's Citizens' Inquiry latest
  Six Tenders received for Citizen's Inquiry.
• HGC responds to HFEA consultation
  Read the HGCs response to the HFEA on the use of human/animal hybrid embryos in research
• HGC responds to PACE review
  HGC responds to the Home Office review 'Modernising Police Powers - Review of the Police and Criminal Evidence Act (PACE) 1984 Consultation Paper'
• HGC backs hybrid embryo research
  Read the HGC's website statement
• The 5th HGC Annual Report
  Download your copy!
• Baroness Kennedy welcomes DNA testing ban
  The new criminal offence to take a sample from someone to test their DNA without their consent.