Site map
- Home
- News
- Key dates
- About HGC
- Origin and role
- Regulatory & advisory framework
- Human genetics bodies (non-statutory advisory)
- Principal health-related bodies in the advisory and regulatory framework
- Human Fertilisation and Embryology Authority (HFEA)
- Committee on the Safety of Medicines (CSM)
- UK Xenotransplantation Interim Regulatory Authority (UKXIRA)
- UK National Screening Committee (NSC)
- The UK Foresight Programme
- National Institute for Clinical Excellence (NICE)
- Medicines and Healthcare products Regulatory Agency (MHRA)
- Medical Research Council
- Nuffield Council on Bioethics
- Wellcome Trust
- Broader context
- Terms of reference
- Working methods
- Our members
- Professor Jonathan Montgomery
- Professor Sarah Cunningham Burley
- Professor Timothy Aitman
- Professor Thomas Baldwin
- Dr Paul Debenham, BSc, PhD
- Mrs Nicola Drury
- Dr Frances Flinter
- Mrs Ros Gardner
- Professor John Harris
- Caroline Harrison
- Mr Alastair Kent
- Professor Anneke Lucassen
- Dr Duncan McHale
- Dr Alice Maynard
- Dr Lola Oni OBE
- Professor Angus Clarke
- Dr Paul Darragh
- Dr Rosalind Skinner
- Dr Anita Thomas
- Ex Officio Member
- Register of members' interests
- Previous Members
- HGC Consultative Panel
- HGC business: work plan
- Contact us
- Frequently asked questions
- Freedom of Information
- Our work
- Plenary meetings
- Information gathering meetings
- Employment testing and genetics
- FISH and chips
- Genealogy Testing
- Genetics and Aging
- Human Tissue Act 2004
- Insurance and genetics
- Patenting genes
- Pharmacogenetics
- Reproductive choice and genetics
- Stem cell research
- UK Biobank
- UK Genetic Knowledge Parks
- Work Plan
- The Strategic Priorities for Genetics Research
- Free fetal DNA (ffDNA)
- Genetics and Discrimination
- Horizon Scanning
- Systems Biology
- Genetic testing and young people
- Public engagement
- Monitoring Groups
- Genetics and Identity
- Genetic Discrimination
- 16 May 2006 - Meeting notes
- 14 February 2006 - Meeting notes
- 6 Dec 2005 - Electronic Patient Record Meeting
- 1 November 2005 - Teleconference notes
- 28 July 2005 - Teleconference notes
- Joint meeting with GAIC
- Biomarkers and Gene Tests Paper
- Letter to Trevor Phillips - Chair Equalities Review
- Letter from Lord Sainsbury - Genetic testing and employment
- Prevelance of Genetic Testing letter
- Prevalence of Genetic Testing in employment - Response from Lord Sainsbury
- Intellectual Property
- Databases
- Genetic Services
- 2008 - 2009
- 2007 - 2008
- 2005 - 2007
- Meetings
- Review of Genetics White Paper response
- HGC response to Breakthrough Breast Cancer
- Interim response to Breakthrough Breast Cancer
- Government response to Genes Direct Letter
- Letter to Government about Genes Direct
- Letter to DH on paternity code
- Presentation from Dept of Health
- Previous Terms of Reference
- Public Involvement (archive)
- Horizon Scanning (archive)
- Genetics and Insurance
- Business Committee meetings
- Working Groups
- Preconception testing
- Genetic Discrimination Working Group
- A Common Framework of Principles for direct-to-consumer genetic testing services
- National DNA Database
- Citizens' Inquiry into the Forensic Use of Genetic Information
- Direct Genetic Testing Seminar
- Genetics and Reproductive Decision-making
- Clarificatory letter on screening recommendations
- 21 Oct 2005 - minutes
- 31 Aug 2005 - Minutes
- 15 July 2005 - Minutes
- 4 May 2005 - Minutes
- 2 March 2005 - Minutes
- 5 April 2005 - Minutes
- 10 Dec 2004 - Minutes
- 26 April 2004 - Minutes
- 19 Feb 2004 - Minutes
- 16 Jan 2004 - Minutes
- 7 Nov 2003 - Minutes
- 8 Sept 2003 - Minutes
- 17 June 2003 - Minutes
- Consultation
- Analysis of Responses
- Scoping Group
- Profiling Babies at Birth
- Genetic Testing Services Supplied Direct to the Public
- Consultation Document
- Consultation Responses
- Association of the British Pharmaceutical Industry (ABPI)
- Ms Alice Maynard
- Alliance Unichem/Moss Pharmac
- Anonymous 1
- Anonymous 2
- Advertising Standards Authority (ASA) and Committee of Advertising Practice (CAP)
- Ms Audrey McLaughlan
- British Association of Nutritional Therapy
- Mr Barry Pearson
- Bevan Ashford
- British Humanist Association
- BioIndustry Association (BIA)
- British In Vitro Diagnostics Association (BIVDA)
- British Medical Association (BMA)
- Boots the Chemists
- Breakthrough Breast Cancer
- British Embassy, Canada
- British Embassy, Germany
- British Embassy in Holland
- British Embassy, Japan
- British Embassy in the US
- British Society of Human Genetics
- Contact a Family (CAF)
- Christian Centre, Nottingham
- Church of England Board of Social Responsibility
- Christian Medical Fellowship
- Mr Colin Butts
- Consumers' Association
- Diabetes UK
- Department of Trade and Industry's Internet Regulation Policy Advisor
- Department of Trade and Industry Policy Adviser on Internet Regulation
- European Bioethical Research
- EC Health and Consumer Protection Directorate-General
- US Food and Drug Administration (FDA)
- GeneWatch UK
- Genetic Interest Group (GIG)
- Ms Gill Wallace-Hadrill
- Mr Jonathan Gray and Ms Lindsay Prior
- GlaxoSmithKline
- Mr Hansei Clark Esquealg
- Health Technology Board for Scotland
- Human Genetics Alert
- Dr Ian Ellis
- Information Commissioner
- Ms Janey Antoniou
- MacFarlane Valentine Bioconsultating (MVBio)
- Dr Mark Brennan
- Professor Martin Whittle
- Medical Research Council
- National Council of Women of Great Britain
- US National Society of Genetic Counsellors (NSGC)
- Occupational Health Advisory Committee and the Health and Safety Executive
- Dr Paul Debenham
- Royal College of General Practitioners
- Royal College of Physicians of Edinburgh
- Mr Robert Walton
- Mr Roger Bull
- Dr Ron Zimmern
- Dr Ros Eeles
- Dr Ros Boothman
- Royal Pharmaceutical Society of Great Britain (RPSGB)
- US Secretary's Advisory Committee on Genetic Testing (SACGT)
- Ms Shirley Hodgson
- Ms Sarah Pettifor
- Sciona Ltd
- Dr Sultana Saeed (ex-ACGT Member)
- Professor Theresa Marteau
- UK Forum on Genetics and Insurance (UKFGI)
- Wellcome Trust
- Welsh Senior Medical Officer
- Consultation Responses - By Section
- The Current Legal Position
- Controls in Other Countries
- Scope of the Review
- The Types of Genetic Test Available
- Should Genetic Tests be Specially Regulated?
- The Right to Personal Genetic Information
- Basic Elements of Consumer Protection
- Possible Future Approaches to the Oversight of Direct Genetic Testing Services
- 9 Jan 2003 - Minutes
- 4 Nov 2002 - Minutes
- 25 Oct 2002 - Minutes
- 1 Oct 2002 - Minutes
- 5 Sept 2002 - Minutes
- 30 July 2002 - Minutes
- 17 June 2002 - Minutes
- Evidence
- Advertising Standards Agency (ASA)
- BioIndustry Association (BIA)
- British Association for Nutritional Therapy (BANT)
- The British In Vitro Diagnostics Association (BIVDA)
- Consumers' Association (CA)
- Dr Paul Debeham (LGC)
- Genetic Interest Group (GIG)
- GeneWatch UK
- Great Smokies Diagnostic Laboratory (GSDL)
- HGC Consultative Panel
- Human Genetics Alert (HGA)
- Medical Devices Agency (MDA)
- Medicines Control Agency (MCA)
- National Pharmaceutical Association (NPA)
- Professor Peter Farndon (Steering Group for UK Genetic Testing Network)
- Royal Pharmaceutical Society of Great Britain (RPSGB)
- Sciona
- UK Office of Fair Trading (OFT)
- Questions raised
- Preimplantation Genetic Diagnosis
- Storage, Protection and Use of Genetic Information
- Consultation Responses
- Association of British Insurers (ABI)
- Actuarial Profession
- Age Concern England
- Alzheimer Scotland - Action on Dementia
- Alzheimer's Society
- Professor Andrew Read
- Ms Ann Philips
- Anonymous 1
- Anonymous 2
- Dr & Mrs Antoniou
- British Federation of Care Home Proprietors
- British Medical Association
- Breakthrough Breast Cancer
- Breast Cancer Care
- British In Vitro Diagnostics (Ms Cecilia Brown)
- Mr Bruce Bedford
- British Society of Human Genetics (Professor Neva Haites)
- BUPA
- CARE
- CEST for Life Sciences
- Church of England Board for Social Responsibility
- Consumers' Association
- Mr David Bird
- Mr David Hornsby
- Diabetes UK
- Diabetes UK Cymru
- Disability Rights Commission
- European Bioethical Research
- Public Health Genetics Network &Faculty of Public Health Medicine of the Royal College of Physicians
- Genetics and Insurance Committee
- Dr Gareth Williams
- GeneWatch UK
- Genetic Interest Group
- The General Medical Council
- Dr Graeme Laurie, Faculty of Law, University of Edinburgh
- GlaxoSmithKline
- Mr Guy Thomas
- Dr Heather Skirton
- Miss Helen Chipchase
- Human Genetics Alert
- Dr Ian Ellis
- Independent Healthcare Association
- Information Commissioner (Elizabeth France)
- Institute of Directors (IoD)
- Ms Jo Knight
- Ms Joan Walters
- Law Society of Scotland
- LGC Ltd (Dr Paul Debenham)
- Liberty
- Medical Defence Union
- Mencap
- Medical Research Council
- National Board for Nursing, Midwifery & Health Visiting for Scotland
- National Consumer Council
- National Council of Women (NCW)
- Dr Nicholas Sagovsky
- National Schizophrenia Fellowship
- North Tyneside Community Health Council (Mrs Sandra King)
- Nuffield Council on Bioethics
- Occupational Health Advisory Committee (OHAC) (Ms Sarah Caldwell)
- Dr Oliver Quarrell
- Committee on Medical Ethics, Royal College of General Practitioners
- Royal College of Midwives Scottish Board
- Royal College of Obstetricians and Gynaecologists (Professor Robert Shaw)
- Royal College of Pathologists
- Royal College of Physicians
- Royal College of Physicians of Edinburgh
- Royal College of Psychiatrists
- Mr Richard Comaish (Bromley Mind)
- Mrs Rita Stuart
- Mr Robert Resta
- Royal Pharmaceutical Society of Great Britain
- Professor Sandy Raeburn
- Sciona Ltd
- Joint Response of the Society and the Faculty of Occupation Medicine
- Mr Thomas Glen
- Tyneside Kidney Patients' Association (TKPA) (Mr Simon Lloyd)
- Trades Union Congress
- Trade Union Disability Alliance
- UK Forum for Genetics and Insurance
- UNIFI
- Union of Liberal and Progressive Synagogues
- University of Wales College of Medicine
- Virgin Direct Personal Financial Services
- The Wellcome Trust
- Summary of Responses
- Inside Information
- Meetings
- Evidence
- Association of British Insurers
- BUPA
- CIS Co-operative Insurance
- Professor David Wilkie
- Mr Guy Thomas
- Information Commissioner Meeting
- Newcastle Meetings
- Rare Disorders and Insurance Report
- Professor Sandy Raeburn
- Mr Tony O'Leary
- Virgin Direct
- Professor A. D. Wilkie Insurance Proposal
- Section 1
- Section 2
- Section 3
- Section 4
- Consultative Panel
- Consultation Responses
- Other meetings
- International
- Information
- Private genetic tests
- Cousin marriages
- Genetics and employment
- Why might genetic information be relevant to employment?
- Genetic tests and employment
- Some key ethical and practical considerations
- What has the HGC has said about this issue
- The UK story so far
- International perspective
- Views and issues relating to genetic information and employment
- What do you think?
- Further information
- Intellectual Property and Genetics
- Pre-implantation genetic diagnosis
- Thinking of buying a health-related genetic test over the counter or from the internet?
- Glossary of terms
- FAQs - genetic tests
- FAQs - research
- Genetic Ancestry Testing
- Genetic testing and personalised nutrition
- Links
- Document library
- Help
- Contact us
- Members